Center for Disability Rights’ Wheel-A-Thon a Success

by Joseph A. Luciano, Disability Rights Action Group of CT

The Center for Disability Rights of West Haven is celebra-ting another successful Wheel-A-Thon. Over 140 people took part in the Wheel-A-Thon held July 24 at Savin Rock.

Approximately $10,000 was raised for programs and/or services offered by the center. Programs include summer self-empowerment camps and scholarships for high school juniors and seniors with disabilities. Each of the 8 students who successfully completed the camps received $500 scholarships.

CDR is a membership organization of persons with disabilities that operates a Center for Independent Living (CIL). CDR advocates for people with disabilities and their issues on a local, state-wide, and national level. It also provides services to individuals and their families, as well as technical assistance and community education to businesses, government, and members of the community.

CDR offers limited services in the form of information & referral services, nursing facility transition services, augmented communication services, and the Helping Each Other Succeed (HEOS) cross-disability support group to persons living in West Haven, Milford, Orange, Wood-bridge, Madison, Clinton, and Westbrook.

For more information, visit www.wheel-a-thon.org. The Center for Disability Rights can be reached at cdr-ct.org or by phone at (203) 934-7077.

PCMH Plus and Changes to Husky Medical Care: What You Should Know

by Coalition for People

At the June meeting of the Coalition for People, Ellen Andrews of the CT Health Policy Project gave a presentation of some very important changes to HUSKY Health. She also introduced the work of the CT Health Policy Project, whose purpose is to ensure there is affordable healthcare for everyone in the state.

Since 2012 HMOs have not been involved in Connecticut’s Medicaid program. Primary care providers work directly with patients. It saves money and people get more care.

PCMH Plus is a new program; Person-Centered Medical Home Plus or PCMH+ provides person-centered, comprehensive and coordinated care to HUSKY Health members. Advocates are concerned it jeopardizes the progress made since 2012. It will allow medical practices to get back 50% of the money they save the Medicaid program. It incentivizes less care which can be achieved by eliminating duplicate tests and improving care to keep people out of the hospital. Savings can also be generated by denial of needed services, not following through and not referring people to specialists. These practices will save the state money and 50% of the savings will get kicked back to the medical practices. Patients can be “cherry-picked” and patients needing high-cost care can be dumped from their providers’ practice.

Patients have the choice to opt-out of PCMH+ and nothing will change with their current care. In fact, if people do not opt-out of PCMH+, they will lose access to Intensive Care Management, a program to help people with complex conditions. Many people who are covered by HUSKY Health don’t know about this program and what their options are. For more information, check the website at PCMHPlusFacts.org.

The next meeting of the Coalition for People is Wednesday, Sept. 19, 2 p.m. in the community room (lower level) of the Fair Haven LIbrary, 182 Grand Ave. All are welcome to attend.

Reflections on the Past Green Year

by Owen Charles, Shoreline Green Party

A little over a year ago, we obtained official chapter-hood for our Shoreline Green Party. It was a joyous thing, springing forth from a rather unjoyous series of disappointments. Many were dismayed by the weakening of democracy in America, the championing of corporate interests by both major parties, and the 2016 election with its home-grown election fraud.

So we came together to see if the grass was greener on the other side—and it was!—Fertile with ideas and fresh perspectives, and inquisitive minds;— Open to citizen participation, running for office, and a shared and self-determined people’s agenda.—Not your typical political party owned, operated, bought and sold by large corporate interests.

On Feb. 26, 2017, we launched with the aim to “start preparing to run candidates, get involved an important issue and legislation advocacy and upturn the status quo of a troubled political system as an official regional chapter of the Green Party!”

I’ll briefly reflect on what we have done in a year, with pride and congratulations to a smart, vibrant, friendly, hard-working, dedicated, growing Shoreline Green Party team! Many more details can be found on our Facebook @shorelinegreenparty and website shorelinegreenparty.org.

  1. Visibility and Activism: We organized gatherings and protests (net neutrality, immigrants rights, May Day and others), marched in the Guilford Parade. Website, Facebook, Twitter, Youtube videos (check it out at Shoreline Green Party on Youtube).
  2. Inspiration and Solidarity: Our first annual Songs of Solidarity in Oct. 2017 at the Guilford Library was standing room only (70+), amazing performances and sing-alongs with a line-up of incredible local artists (stay tuned for “Second Annual!”). We sponsored a showing of “Requiem for the American Dream” at Guilford Library.
  3. Local Democracy in Action: Organized public support to stop privatization and development of the Academy School in Madison, ban fracking waste in a number of towns, and stop the development of a waste dump in Clinton.

Our first four candidates in 2017, in Clinton and Madison, each had impressive showings with over 1,100 votes. We now have four local candidates for this Nov. 6! with key campaign support and volunteering from dozens of people.

Clinton members have led the way in getting appointed to Town commissions and boards.

If you are interested in these kinds of actions, please join with us in the Shoreline Green Party! We welcome participants from all surrounding areas including New Haven and environs and are working with other local groups and welcome doing that more.

Please reach out to us by joining our Facebook group @shorelinegreenparty or contacting me! Owen Charles owencharles2003@yahoo.com or shorelinegreenparty@gmail.com; phone (203) 421-1094.

Take Part in a Fun Event in West Haven to Support Youth with Disabilities, Tuesday, July 24

by Christopher Zurcher, Center for Disability Rights

The 2018 Center for Disability Rights Wheel-A-Thon – a fundraising and community awareness campaign to benefit the youth programs and activities of CDR and its partners – will take place from 6-8:30 p.m. Tuesday, July 24, at Savin Rock Conference Center, 5 Rock St., West Haven.

Registration will take place and pizza will be served to registered participants from 6 to 6:45 p.m. The ceremony starts at 6:45 and ends around 7 p.m. when the walk begins. Awards to walkers will be distributed around 7:30 p.m. and there will be live entertainment throughout the event.

Wheel-A-Thon participants can walk, roll in a wheelchair or ride a bicycle along a 1-mile route. Register and participate as an individual or form a team with your family, friends, and co-workers. To register to participate, visit the “Participate” page of the wheel-a-thon.org website.

The money raised during the 2017 Wheel-A-Thon provided Summer Empowerment Camp opportunities to nine high school juniors and seniors and provided five Wheel-A-Thon Scholarships.

Individuals who are not part of a team but who raise at least $25 for young people with disabilities can participate in the CDR Wheel-A-Thon as individuals.

Buy your tickets or make a donation to support CDR’s youth activities here: https://www.eventbrite.com/e/2018-cdr-wheel-a-thon-tickets-43038218470.

For more information call CDR at (203) 934-7077. Ask for Sandy or press Extension “10,” and she will return your call as soon as she can. If you prefer email, please send email to info@cdr-ct.org.

Free ‘Underground Travel Guide’ for Persons with Disabilities

by Joseph A. Luciano Sr., Disability Rights Action Group

This guide is currently in PDF format and can be useful to persons with disabilities, especially those using wheelchairs, walkers, scooters, or other mobility devices and seeking education, fun, entertainment, shopping, or dining experiences.

You may be (or you may know) a person who uses mobility devices and wants to “go out” to a mall, shopping center, store, museum, theater, library, or restaurant. You should know whether your destination is accessible – by ADA standards. You may find barriers there. For example, there is no ramp to get over steps at the entrance or the doorway is too narrow. Worse, the restroom is totally inaccessible!

Today – even 28 years after enactment of the Americans with Disabilities Act – many public entities and their employees still do not know about their obligation to provide ADA 1990 access and mobility standards. You should not assume your destination has complied with federal law. Incidentally, educational materials including brochures, booklets, guides, and instructional videos about disability rights are free at ADA.gov under “Technical Assistance Publications.”

The Underground Travel Guide also gives advice on how to use the paratransit system. As good as it is, the system has a few quirks and snags you should be aware of. Connecticut has 12 ADA service providers comprised of vans and minibuses equipped with lifts to board and deboard persons using wheelchairs. Go to https://www.ctada.com/ServiceProviders.asp to see the providers serving your community and your destination. To learn how to obtain service click on the provider serving you. (Depending on the destination you may need to ride with more than one provider.)

The providers are:

  1. Greater Hartford Transit District
  2. Greater New Haven Transit District
  3. North-East Transportation Company
  4. Southeast Area Transit District
  5. Valley Transit District
  6. Middletown Transit District
  7. Milford Transit District
  8. Greater Bridgeport Transit Authority
  9. Windham Region Transit District
  10. Housatonic Area Regional Transit District
  11. Norwalk Transit District
  12. 9-Town Transit/Estuary Transit

The travel guide is copyrighted and is provided free here: https://tinyurl.com/2018-travel-guide.

For more information, e-mail DRAGconnecticut@yahoo.com or call (203) 463-8323.

Grammar School Students Who Already Challenge and Change The World

by Frank Panzarella, community activist

The Green Wolves, fourth-grade students at Elm City College Preparatory Elementary School, came up with that name for their own wonderful and imaginative adventure in becoming young activists.

Their teacher, Kurt Zimmermann of their Expeditions class, saw the PAR newsletter on-line and invited us to do a training for young people on things to think about when becoming an activist.

While some were still shy, others were bursting with ideas and questions. They surprised us right off by quoting suggestions from our own notes before we even began.

These kids were very interested in environmental issues and showed us their current great campaign. They raised money to replace all the teachers’ disposable coffee cups with lovely ceramic mugs that had the teachers’ names printed on them, so the teachers would reduce their paper waste.

We were thrilled to meet this group of engaging and endearing students and thank Mr. Zimmermann for the opportunity. We thought PAR readers would be interested in the notes we left the students with.

An Activist Guide List – Questions to Ask Yourself

  • “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed it’s the only thing that ever has.” Margaret Mead
  • “Doing something is better than doing nothing.”
  • “My way is not the only way.”

Passion

  • What are the issues you feel strongly about? What would you like to accomplish or change? What do you need to study and understand?
  • Are there other people you know concerned about these issues? Who can you talk with?

Organize

  • How can you educate people about why your issue is important?
  • What are your short term and long term goals? What would you like to see happen in relation to your cause?
  • Who is it you would like to reach on your cause?
  • Are there people or groups who might be allies in reaching your goals?

Action Plans

  • What kinds of actions are appropriate for your cause?

Educational events

  • Write letters, articles, and petitions.
  • Use social media.

Rallies and demonstrations

  • Picket lines
  • Speak at hearings or local government meetings.

Create a plan to advance your cause and build support

  • Call a meeting to plan your actions if necessary.
  • Figure out a group process.
  • Be aware of your members and their ideas.
  • Promote democracy in action – listen to all and learn to resolve differences.
  • Respect the rights of others to have different views.
  • Struggle for a programmatic unity on issues — in other words, something everyone in your group can agree on to take some action.
  • Have a summation meeting. Meet again after your action to figure out what worked and what didn’t. What do you think could have been better? Decide if you will do something next, and pick a date for another meeting to figure out what it will be.
  • Have fun doing good things for the benefit of everyone.

Pay Attention to the Signs at the Public Library

by Robin Latta – Coalition For People

The Coalition For People was in the habit of meeting once a month in a cozy niche of the New Haven Free Public Library (Ives branch) for decades. One fall day in 2016, however, Mary Johnson, our elderly but forceful organizer/leader, declared that the library’s bathrooms were consistently in atrocious condition and “could we please meet elsewhere?”

Our following meetings were at Mary’s house, and we let the library know why its space was no longer suitable for our meetings. We learned the maintenance of the bathrooms was subcontracted out to a private company. This was the case in other City buildings as well, which angered us as these are jobs that should be done by City union employees.

That was the beginning of the changes to come… Upon further investigation, two members of the CFP team discovered no handicap accessible bathroom on the lower floor, while the potentially mobile metal sign standing in the front of the alcove of the handicap accessible bathroom on the main floor was perennially poised to deter entrance. The sign read “OUT OF ORDER.”

We knew the building was an older building and probably out of date, but we never realized the other “forces” at work. When we asked for an explanation of the sign, we were told that it was put there to avoid “hanky panky” in the bath-room. Upon further investigation, our “Supersleuth” found evidence of a prior handicap accessible bathroom in the women’s bathroom on the second floor that had actually been converted into an “inaccessible” stall.

When City Hall and the library were unresponsive to our pleas for accessibility, we finally made an ADA [Americans with Disabilities Act] complaint which has been handled regionally through the Boston office. Currently, it has been placed in the hands of a lawyer who actually lives in Connecticut. Since the library and the City were given 180 days to “clean up its act,” their time was up on March 12, 2018.
We are saying all of this because of the stated excitement of the possibility of new renovations. We are sincerely hoping that everyone will benefit from those renovations, including the most underserved populations. (“I could have built a house by the time it took to fix the bathrooms” … so said one librarian, “and a garage.”)

But signage continues…one way or another. Now a big sign in the vestibule of the front entrance is posted and its reading “disallows” people coming in with more belongings than will fit under their seat. Is this a thinly veiled way of saying the homeless are unwelcome? Maybe instead, the library could (especially with new renovations) actually provide adequate accommodations for belongings.
Further, if the library is intent on making up new signs, maybe it could remind people that they are being surveilled inside the library by inconspicuous surveillance cameras. Even though it may be legally permissible to do so, some of us might feel intruded upon. So, folks…keep your eyes open when you use the New Haven Public Library and watch for the signs….

Seymour Police, Town of Seymour Policies Discriminate against Disabled

by Joseph A. Luciano  Disability Rights Action Group of CT

I have asked NBC-TV Troubleshooters to investigate the present-day status of ADA access and mobility in downtown Seymour. Investigation can reveal the plight of persons with disabilities (PWDs) living here.

This is happening 27 years after the Americans with Disabil-ities Act (ADA) was enacted (July 26, 1990). That’s 10,100 days ago. This was happening even before Seymour approved 38 new senior/disabled housing units downtown. On Columbus Street alone, the senior/disabled population has increased from 12 to 38—not counting the disabled living in my downtown apartment complex (Fallview Apts). Often, only able-bodied people can get around in downtown Seymour. I and other PWDs cannot—because police do not enforce ordinances or regulations that enable accessibility. I have filed complaints on these issues against Seymour and its police department with the Connecticut Commission on Human Rights & Opportunities (1730312, 1830021). Inex-plicably, CHRO ruled that town and police policy do not discriminate against PWDs—even though only able-bodied persons can get around.

PWDs are routinely denied their rights to access and mobility at Seymour’s new $6.4 million park (Paul Pawlak Sr. Fishway & Park at Tingue Dam). Police do not ticket or tow away vehicles obstructing or blocking access to the “accessible walkway” leading to the scenic lookout.

PWDs are routinely denied their rights to access Seymour’s downtown businesses when property owners flout Seymour Ordinance 14-6, which mandates timely removal of snow from sidewalks. Seymour PD itself routinely flouts Ordinance 1-9, which mandates that flouters “shall” be fined up to $100/day for each day of the offense. Seymour PD has admitted never having fined snow ordinance flouters. Sidewalks covered with snow that should have been removed by town law prevent PWDs from access to groceries, restaurants, pharmacy, banking, worship, theater, shopping, and other reasonable purposes. For more information: DRAGconnecticut@yahoo.com, (203) 463-8323

PAR Featured on WPKN Radio. Listen.

On Jan. 8, Scott Harris, host of Counterpoint on WPKN Radio (89.5 FM), interviewed Paula Panzarella, one of PAR’s editors and Planning Committee members.

The Planning Committee felt this interview would be a great way to introduce PAR to the many progressive organiza-tions active in the peace movement, the struggle for immi-grant rights, work with Black Lives Matter, promotion of environmental projects, the struggle for civil rights, criminal justice issues, the push for healthcare for all, etc. Many thanks to Scott Harris and WPKN for agreeing to give PAR this opportunity to reach a new audience.

We hope that groups which were not familiar with PAR will send us articles and their event listings so PAR readers can learn about the work they are doing and get involved. PAR readers can listen to the interview on the following link: http://counterpointradio.org/2018/mp3/180108d-ctpt-panzarella.mp3.

Seymour’s Senior Center To Comply With ADA Accessibility Standards

Joe Luciano, Disability Rights Action Group of CT

Seymour’s senior center has agreed to comply with ADA 1990 accessibility mandates after an investigation by the Office of Civil Rights, U.S. Department of Health & Human Services. In February 2016 I filed a complaint after observing that the center’s picnic grove and its two picnic tables were inaccessible. Many center members use wheelchairs. A 6-inch curb posed a barrier to the grove; a crosswalk was absent. The picnic tables were built by town high school students who, together with their teachers, were unaware that the ADA requires picnic tables to be wheelchair accessible.

Rather than making a simple modification (adding extensions to the table ends), the center removed the tables and closed the grove. The center will also post larger signs at its public entrance indicating the location of the accessible entrance. (Existing signs were too small and could only be read after climbing the steps to the able-bodied entrance.) The center will also fix the inoperable doorbell at its acces-sible entrance and post signage giving phone numbers for contacting center staff.

For more information: DRAGconnecticut@yahoo.com.

Connecticut: Still Unready for Independent Living

Joseph A. Luciano Sr., Disability Rights Action Group of CT

ADA compliance in my community (Seymour) and most of Connecticut’s other 168 hasn’t changed much since the diatribe I wrote in 2014.

In my hometown, 26 years, or 9,783 days of opportunities on the road to accessibility—and, therefore, achieving status as a Livable Community—have been wasted. 9,783 days! Most merchants, their employees and property owners still do not know about the Americans with Disabilities Act of 1990. Or they don’t care—or have little incentive to care. Even today, community leaders have no incentive to provide educational town meetings, one-on-one counseling, or materials such as guides, or instructional videos. Incidentally, educational materials are free at ADA.gov.

Educating businesses about access should be community leaders’ top priority. Members of boards and committees themselves should be learning regulations on access and be instructing merchants. Or delegate someone with expert ADA knowledge to lead the way. Those who don’t know or who don’t care should just get out of the way. Or get pushed out of the way.

The Connecticut Main Street Center organization should end giving awards for “pretty” downtowns; it should instead give awards for ADA compliance or accessibility! Businesses that make themselves accessible open the market to consumers of all abilities and increase local economic development.
The program “Money Follows the Person” has had Gov. Dannel P. Malloy’s strong support to move thousands of eligible persons out of nursing homes into independent living. This initiative, targeted for completion by 2016, is already saving government hundreds of millions a year. But there’s a catch: Independent living, or Aging in Place, requires communities to be ready as “livable” communities. (Communities become livable when their leadership implements ADA standards.)

My community’s leadership recently (and inexplicably) approved more senior/handicapped housing despite obvious community un-readiness for independent living. Result: All that seniors and persons with disabilities now living here can do is use their canes, walkers, wheelchairs, and scooters to merely “stroll” around, looking into inaccessible shops.

Go figure.

To contact Disability Rights Action Group of Connecticut: DRAGconnecticut@yahoo.com, (203) 463-8323.

Celebrate May Day May 1 with International Workers’ Day Rally and General Strike

Call for General Strike on May 1!

For full video coverage of the May Day festivities, visit http://www.thestruggle.org/Mayday%202017%20in%20New%20Haven.htm.

The rally begins with speakers and performers on the New Haven Green from noon to 5 p.m. on Monday, May 1, and will be followed by a Solidarity March starting at 5 p.m.

New Haven joins a call for a nationwide strike to demonstrate our economic power by not going to work, not going to school and stopping business as usual. We aim to highlight the economic power of workers: immigrants, women, Muslims, LGBTQ folks, Native Americans and African Americans and every other marginalized group that is currently under attack by the Trump administration.

We are asking you to join us and show solidarity: close your business on May 1; don’t go to work; don’t go to school.

Join the rally on the New Haven Green from 12 to 5 p.m. Speakers, live music, children’s activities, and a May pole! Join local justice, peace, equality, and labor groups as well as social service organizations, educators, students, healthcare workers, artists and ALL people on the Green.

Join the international workers’ march from the Green through Fair Haven at 5 p.m.

Funded in part by a grant from RESIST, Somerville, MA; web: http://resist.org; phone: (617) 623-5110.

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